GYP!


I think I have one of the most sensitive dogs, I am sure he could have become a guide dog for the blind or a hearing dog, if we had not rescued him when he was just a one year old puppy. The reason I am sure of it, is watching what he has starting doing here, at our home, for me!

 

I can no longer try and convince Mr G the pain is not so bad today, as Gyp is actually afraid of pain and will not come in to our room if it is a bad pain day. On other days, he tries so hard to be brave. He comes up on to the bed and gives me cuddles but he trembles and shakes the whole time.

 

The most amazing thing he has started to do is to take action if I have a black out. He will start barking or nudging Mr G, until he comes to check on me. Mr G has learnt the different bark he uses now. We are just amazed and so proud of him.

 

I would say that Gyp, my amazing dog, is now a part of the Carer’s team in our family. It really is astounding how dogs can help in so many ways.  Being the eyes for someone who has problems with their sight, being ears for someone who has problems with their hearing and helping people who have problems using parts of their body. They also become much loved family pets. I know I count myself extremely lucky to have Gyp watch over me and believe me I make sure he knows how much he is loved by everyone in the family. I could not resist letting you see how cute he is!

My sleepy puppy

 

Until next time, take care

Mrs G!

 

Ps. Had a rough week last week, really wanted a cigarette, but I managed to stand firm, so things are still going well and your support really helps me very much. So many thanks.

 

Down but don’t count me out!!


I know I mentioned a couple of weeks ago that I was feeling a bit down but I am going to be honest to you and finally to myself that I have been very down.

 

There have been so many little things that I suppose have just gathered together and added to that the extra pain I have right now, that seems to have made me feel like this way.

 

Now I am writing about this I can identify some of the little things. With the beautiful weather we have, I have heard everyone outside sitting, talking with neighbours, family and friends. I so longed for it to be me just sitting outside, reading and writing. I also smelt, near dinner time as the heat lessened slightly, the bar-b-cues, and I could feel myself thinking back to having bar-b-cues ourselves or going to friends and family for a lovely night, sitting outside, eating and of course the best part, having a few glasses or even bottles of wine. I have to admit I really miss drinking wine. I also miss just jumping in the car with the kids and just going somewhere, and of course there are so many other things I miss.

 

I suppose what I am trying to say is that everyone who suffers from chronic pain will miss some things from their lives that they used to love doing but at the moment can no longer do.

 

Then we have the pain to cope with also. At the moment I am having a bit of a battle with my pain, but it is a battle I hope to win. I will not bore you with the details.

 

So when you add together the things we miss and the pain we have to fight each day, it is only normal that every so often we find ourselves feeling down.

 

I am trying my hardest to stop feeling the way I do and I think *touch wood* that with the baby steps I am taking, that soon, I will find myself not feeling as down.

 

I returned to Facebook this week and I would like to thank everyone for my warm welcome back. Hopefully my next step, going back to playing WoW, will happen very soon.

 

The point I am trying to make here, is this, Unpaid Carers, Family and Friends, do not be alarmed if your Caree, Family Member or Friend feels down, just keep an extra eye on them and although I am not a doctor, my prescription would be a lot more extra hugs.

Until next time, take care

Mrs G!

 

P.s Here is some good news, with the help of my SKYCIG, things are going well with my giving up smoking and fingers crossed it will stay this way. I will update you the next time I post. I also want to thank everyone who is supporting me. It really helps so very much.

Mr G’s Salon!!


My husband has learnt to do so many new things since my illness began, he is now, of course perfected the art of laundry, got fed up of my love of washing dishes, so we acquired a dishwasher. The art of folding and hanging his laundry to such a perfect degree, that my second love, ironing, is hardly ever required.

 

Mr G’s cooking in all reality beats mine hands down so damn much. His soup making, stews, roasts, bread making and to top it off his bloody jam making skills, make me so damn jealous.

 

His hunting down bargains while shopping also beat mine I am ashamed to admit. Unless he shops with our eldest daughter, his weekly shopping means I can actually save money!!

 

Now he has yet again excelled at another new talent, Mr G to my utter and total amazement, not only cut my hair, he managed to thin it quite a bit also.

 

Although he has amassed all the above new talents, his biggest and best new talent his being an unpaid carer. He finds this a shock that he is able too care for me. I however never ever doubted he could do this, as I have always trusted in him and please believe me that I have total respect in every unpaid carer.

Take care.

Mrs G.

The Visit!


So here I am sitting, consumed by nerves, because after four years of waiting and trying everything possible to make it happen sooner. Today is finally the day for my first social worker visit,  I just pray Mr G does not tell too many corny jokes.

 

There will be many things to discuss but again I pray that amongst the many things are the two major adaptations to the house!

 

Watching Mr G going around tidying, cleaning and hovering, I feel ashamed, embarrassed and hurt that I can do NOTHING to help him. Right now I feel totally and utterly useless and the lowest of the low.

 

What a surprise she is late and I am now visibly shaking with nerves. One thing I have learnt since becoming ill is you have to wait for everything.

 

Well now she has gone and she was such a lovely, warm, understanding person and wow everything has changed at the Social Work Department. I had to tell her my life story, so she could get to know me before I got ill and could also see if I meet the Social Work Department’s new criteria. Mr G and I were left with a form to fill out and return as soon as possible. Now we have to think of things that will make my life much better than it is right now. Then once she knows which way everything will go, she will come back and visit again and let us know if I meet their criteria. So be prepared for many more posts, I would love for you all to find out exactly what is going to happen also.

 

Until next time, take care

Mrs G 

List of Possible Uses for Distraction Therapy!


Playing Solitaire with real cards or online, I play Forty Thieves to help me every now and then.

Knitting, Crotchet, Sewing, Tapestry, Cross Stitch. Drawing, Sketching, Painting, I can’t do any of these things, so I thought I might try an adult Painting by Numbers, slightly harder than the children’s version.

If possible you could try Baking, I can no longer do anything like that and felt a huge burden to my family, so I took over the finances, it helps lessen the pain for a little while but more importantly, I feel I am contributing slightly to helping the family.

Games on Facebook, keeping in touch with friends on Facebook, possibly tracing back down your Family Tree, learn more History from a period that interests you, collecting anything that interests you also.

Swimming can be a great help but beware some people experience feeling extremely heavy and severe pain on leaving the pool. If you are well enough perhaps learning Thai-Chi would be helpful also.

Singing and playing music or just listening to calming music can help. Reading, writing, this can be done in a variety of ways, writing letters to friends, writing fiction or more towards factual, writing poetry.

I find I get short pain relief by making lists of everything to be done the next day, I also found a way to bolster my spirits was to make lists of things I could do mainly alone but sometimes with a small amount of help from my carer.

Play board games with your carer, family or friends, for example: Chess, Backgammon, Trivial Pursuits, the list can be a long one. Meditation, if not known already is well worth learning, as it can be a great way of helping to relieve pain.

To begin with some of these things, as already mentioned may cause a degree of extra pain but if you feel that you are enjoying yourself it may well be worth continuing; the extra pain should not last too long. However if your pain gets a lot worse you may well have to stop.

These are just a few suggestions on things that may distract your pain. I really hope that they are of some use, even if it is just to give you an idea.

Until next time, take care.

Mrs G.

Ps. making this list not only distracted my pain but gave a couple of new ideas I can try. I am sure I will tell you about how it goes some time…

Want to know a secret?


I will be honest here and say I only started to play World of Warcraft (from now on known as WoW) to be able to understand at least one thing our then teenage son was talking about. I then got hooked myself and just had to keep playing. I then sadly got sick and found out that Yay, WoW actually helped reduce my pain whilst I was playing it.

 

I have played now for six years and the funny thing is my son stopped playing about three years ago but I just can not stop and don’t want to stop. I role play and think the reason it helps me reduce pain is because I immerse myself totally while playing. That just means I play in character the whole time, even when I am by myself questing, I will talk to my companion pet or hunter’s Pet if I am Triell, my main character who as you will have probably guessed is a hunter. I also talk away to the Npc’s , they are just characters the makers put in, they don’t talk back to me but I still talk away.

 

It is not just the fact that playing reduces my pain, I love playing this game so much as I can run, jump, be amongst other people, some of whom still don’t know I am disabled. I have made so many friends and some of them I have grown to love because their friendship is given unconditionally.

 

I am not saying that this will help anyone else but that you should try and find at least one thing that can take your mind off the pain you have to go through. I write, meditate and if it’s a good pain day I can normally concentrate on reading also. I will go and make a list of other things that may help you distract yourself from the pain and put it up on the blog as soon as I can.

 

Hope this has helped a little and will start work on the list straight away.

 

I hope you have a good pain day

Mrs G

You May Not Believe This But I Count Myself Lucky!


Yes I suffer massive pain, take countless medications, am a prisoner in my own home but I still count myself lucky. I look around at everything that is happening around the world and I could be in many situations that are worse than the situation I am in.

I could live in Syria and be surrounded by civil war; never knowing what is happening day to day.

I could be one of our many soldiers or civilian workers in Afghanistan.

I could be living in Iraq, amidst countless car bombings and suicide bombers.

I could be a homeless person anywhere around the world, never knowing when or if I would eat that day or get lucky and get a place overnight in a shelter.

But I am none of those things, I am a person who needs twenty-four hour care and am lucky that my husband gave up his job to become my full time carer and am lucky that all my children at one point have been young carers for me, at this moment our youngest daughter is filling this post.

I never ever wanted to be this ill and requiring care but I am, and I am extremely lucky.

As Carer’s Week draws to a close, I would like to thank my husband and children but also every unpaid carer whether they are young carers or a full time carer. We are all lucky and extremely grateful to have you and the outstanding care you give.

This is difficult for me to write!


It is difficult for me writing this, as I am the person who is cared for by an unpaid carer. As you all know I am Mrs G, and what you don’t know is that I am disabled. Mr G, my amazing hubby is my unpaid carer. I literally could not manage without him and I have just realised I have not thought what would have happened to me if he had decided to leave.   I realise how very, very lucky I am.  Mr G does everything in the house, he cooks, cleans, shops walks the dog, empties and fills the dishwasher and also cares for me. If I have an appointment with my doctor or the pain clinic, he has to help me dress for that. Help me down to the car and then into the wheelchair and then off to see either our GP or my Consultant.  When back home again, the fun begins, we have the worst stairs ever, they cannot even fit a stair lift as they are so steep and the ledge is so very small. Climbing back up them after being out is not just bad, it’s horrific. But Mr G helps by telling me how well I am doing and if I am finding it too hard he helps by pushing on my bum, he does say climbing the stairs is horrible for me but has it perks for him.

He helps me change into my pj’s and at the moment I have bladder problems so I have to wear incontinence pants which he also has to help me put on. Don’t get me wrong, as I have said, I could not manage without him but I hate what he has to do sometimes. To begin with I could not even pee with him in the bathroom and I still cannot go for a number two with him there. Mr G has to  help me wash and when all that is done he helps me back into bed and it’s almost as if I make a switch and it’s my husband there and I can get cuddles and kisses, depending on his mood and mine. Mr G is not a moodie man but if you are woken pretty much every night then you will not be in the best of moods either. I try my hardest not to waken him but then if I have a wee trip and hurt myself, it makes it harder on him than if I had just asked for help to begin with. Well that is what he tells me.

What I have written above only scratches the surface and I will go into greater detail over my next few posts. Mr G takes care of the house, the dog, our daughters then me. He is paid an allowance for caring for me but in all honesty it’s an insult. It is time all unpaid carer’s are heard and cared for themselves. If I can only get one person to see what they have to do then I will be happy.

In all my other posts I will be open and honest as to how I am coping and if I have found any ways to help me cope with the pain.