GYP!


I think I have one of the most sensitive dogs, I am sure he could have become a guide dog for the blind or a hearing dog, if we had not rescued him when he was just a one year old puppy. The reason I am sure of it, is watching what he has starting doing here, at our home, for me!

 

I can no longer try and convince Mr G the pain is not so bad today, as Gyp is actually afraid of pain and will not come in to our room if it is a bad pain day. On other days, he tries so hard to be brave. He comes up on to the bed and gives me cuddles but he trembles and shakes the whole time.

 

The most amazing thing he has started to do is to take action if I have a black out. He will start barking or nudging Mr G, until he comes to check on me. Mr G has learnt the different bark he uses now. We are just amazed and so proud of him.

 

I would say that Gyp, my amazing dog, is now a part of the Carer’s team in our family. It really is astounding how dogs can help in so many ways.  Being the eyes for someone who has problems with their sight, being ears for someone who has problems with their hearing and helping people who have problems using parts of their body. They also become much loved family pets. I know I count myself extremely lucky to have Gyp watch over me and believe me I make sure he knows how much he is loved by everyone in the family. I could not resist letting you see how cute he is!

My sleepy puppy

 

Until next time, take care

Mrs G!

 

Ps. Had a rough week last week, really wanted a cigarette, but I managed to stand firm, so things are still going well and your support really helps me very much. So many thanks.

 

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Who Is That Person In The Mirror?


I found myself having to look in the mirror a few days ago, something I normally avoid at all costs. I looked in but did not have a clue who it was looking back at me.

 

The first thing I noticed was my eyes; they had lost the sparkle that was normally there. Then I looked at my neck, only to see I had no neck anymore. My goitre has swollen so much due to my Thyroid Gland not working properly anymore.

 

Then I saw my body and have to admit I cried. I had been told that some of my medications would make me gain weight. It did seem weird as I am hardly eating at the moment. They really were not joking about the weight gain and of course I cannot exercise very much at the moment. The pain makes it slightly hard and when I am outside, I am in my wheelchair and until I can get a stair lift, I am mainly marooned upstairs. So my exercise is walking to and from the bathroom once a day, as I use my commode in my bedroom the rest of the time.

 

So be prepared, something I never was, that some of your medications will change you on the outside, but as long as your mind and voice is still there, that is all that really matters to begin with.

 

I know as long as I have my mind and voice, I will try my hardest to keep talking and hopefully help at least one person and to let them know they do not need to go through anything alone.

Until next time, take Care,

Mrs G!

P.S. Still good news with giving up smoking. “Touch Wood” it will stay this way!!!

Down but don’t count me out!!


I know I mentioned a couple of weeks ago that I was feeling a bit down but I am going to be honest to you and finally to myself that I have been very down.

 

There have been so many little things that I suppose have just gathered together and added to that the extra pain I have right now, that seems to have made me feel like this way.

 

Now I am writing about this I can identify some of the little things. With the beautiful weather we have, I have heard everyone outside sitting, talking with neighbours, family and friends. I so longed for it to be me just sitting outside, reading and writing. I also smelt, near dinner time as the heat lessened slightly, the bar-b-cues, and I could feel myself thinking back to having bar-b-cues ourselves or going to friends and family for a lovely night, sitting outside, eating and of course the best part, having a few glasses or even bottles of wine. I have to admit I really miss drinking wine. I also miss just jumping in the car with the kids and just going somewhere, and of course there are so many other things I miss.

 

I suppose what I am trying to say is that everyone who suffers from chronic pain will miss some things from their lives that they used to love doing but at the moment can no longer do.

 

Then we have the pain to cope with also. At the moment I am having a bit of a battle with my pain, but it is a battle I hope to win. I will not bore you with the details.

 

So when you add together the things we miss and the pain we have to fight each day, it is only normal that every so often we find ourselves feeling down.

 

I am trying my hardest to stop feeling the way I do and I think *touch wood* that with the baby steps I am taking, that soon, I will find myself not feeling as down.

 

I returned to Facebook this week and I would like to thank everyone for my warm welcome back. Hopefully my next step, going back to playing WoW, will happen very soon.

 

The point I am trying to make here, is this, Unpaid Carers, Family and Friends, do not be alarmed if your Caree, Family Member or Friend feels down, just keep an extra eye on them and although I am not a doctor, my prescription would be a lot more extra hugs.

Until next time, take care

Mrs G!

 

P.s Here is some good news, with the help of my SKYCIG, things are going well with my giving up smoking and fingers crossed it will stay this way. I will update you the next time I post. I also want to thank everyone who is supporting me. It really helps so very much.

When A Little Branch Appears….Hold On!


I have been really down and ill the past couple of weeks, hence why I have not posted as much. Touch wood, however, I think I have hit rock bottom and am starting to climb back up, I am trying not to go too fast, or I may end up crashing back down again.

 

Mr G and  I find ourselves childless for a few days, I think I let go of the I am fine girls honest sign and on the first day I slept on and off all day and night. It did me a lot of good.

 

I don’t know about any of you but my appetite grew legs and left me some time ago now. However, after my long, long sleep, I woke up feeling hungry. This was amazing as it has been so long since I actually wanted to eat. I had some sandwiches around 10am (ish) and then was totally flabbergasted, when around 6.30pm (ish), I again felt hungry, so again I ate. This eating thing is in the very early stages, as it has only happened the past couple of days.

 

I have jumped on to this tiny new branch and am holding on tightly. I really want it to work, for many reasons, one being my tablets may work better and another reason is my bowel may just stop being lazy and work properly again.

 

I am maybe thinking way too fast but just by feeling hungry, which to most people is natural, I can see so many ways it could help me. So I am now clinging for dear life on to this tiny branch, praying it will become stronger, which would make me just that little stronger also.

Take Care

Mrs G 

An Inspirational Man; Giles Duley!


I watched a documentary on Giles Duley last night. I was feeling pretty fed up as I had fallen again and everything ached. However after the first five minutes of the documentary, I was inspired and knew my next blog should be about Giles Duley.

 

He gave up being a fashion photographer, to travel the world and document the stories of the forgotten people. His travelling took him to Afghanistan, to take photos, not just of the injured soldiers but he also planned to take photographs of the injured civilians and enable their stories to hopefully be listened to more.

 

Whilst on foot patrol on one of his last days with the 75th Cavalry Regiment (United States) he stepped on an IED. From that moment on Giles Duley’s life changed completely, he suffered catastrophic injuries, losing both his legs and his left arm.

 

When he arrived back in Britain, he was put straight away into an intensive care unit. During his time in there he nearly lost his battle to survive on more than one occasion. It took quite a few operations over several months before he could even think about rehabilitation.

He went back to Afghanistan to finish what he started, to meet and photograph civilians who have been caught up in this battle also.

 

The inspiration of this man has happened in many ways. However, to me, it was helping a man keep up trying to walk on his two prosthetic legs. Before the end of the programme, the Afghan civilian was walking faster than Giles.

 

This a link to some of his work. I hope, like me, you find this man amazing with all the pain he must have coped with and maybe still does.

 

Thanks for taking the time to read this

Mrs G.

Mr G’s Salon!!


My husband has learnt to do so many new things since my illness began, he is now, of course perfected the art of laundry, got fed up of my love of washing dishes, so we acquired a dishwasher. The art of folding and hanging his laundry to such a perfect degree, that my second love, ironing, is hardly ever required.

 

Mr G’s cooking in all reality beats mine hands down so damn much. His soup making, stews, roasts, bread making and to top it off his bloody jam making skills, make me so damn jealous.

 

His hunting down bargains while shopping also beat mine I am ashamed to admit. Unless he shops with our eldest daughter, his weekly shopping means I can actually save money!!

 

Now he has yet again excelled at another new talent, Mr G to my utter and total amazement, not only cut my hair, he managed to thin it quite a bit also.

 

Although he has amassed all the above new talents, his biggest and best new talent his being an unpaid carer. He finds this a shock that he is able too care for me. I however never ever doubted he could do this, as I have always trusted in him and please believe me that I have total respect in every unpaid carer.

Take care.

Mrs G.

Should we trust our Gp’s?


I thought my Gps were two female Doctors who job shared. I asked for these doctors especially and was assured they both would be named as my full time Doctors’.

 

 

However I have recently learnt that my named doctor is not the doctors I see but some doctor, whom I know of, but have not seen him in over 5 years. It gets worse, it seems that this doctor not only receives all the reports sent to my Gps’ but also writes all the reports asked for by many different agencies.

 

 

How on earth can I trust this doctor to write a true report about me when I have not seen him in ages and why do reports about me get sent to him to read?

 

Since I have started to write this blog I have to admit I feel braver. So I am going to write to another doctor within the same practise and ask that he be not only my named doctor but the only doctor, were possible, that I see.

 

I am so upset by finding this out that if the doctor I ask, cannot take on any new patients, I think I will have no other choice but to leave our practise and join the other Health Centre in my town.

 

So please, double check that your Gp is the one that all reports about you and that all reports asked for are written by the main doctor you see or at least one that knows you!

 

Take care

Mrs G.

 

The Visit!


So here I am sitting, consumed by nerves, because after four years of waiting and trying everything possible to make it happen sooner. Today is finally the day for my first social worker visit,  I just pray Mr G does not tell too many corny jokes.

 

There will be many things to discuss but again I pray that amongst the many things are the two major adaptations to the house!

 

Watching Mr G going around tidying, cleaning and hovering, I feel ashamed, embarrassed and hurt that I can do NOTHING to help him. Right now I feel totally and utterly useless and the lowest of the low.

 

What a surprise she is late and I am now visibly shaking with nerves. One thing I have learnt since becoming ill is you have to wait for everything.

 

Well now she has gone and she was such a lovely, warm, understanding person and wow everything has changed at the Social Work Department. I had to tell her my life story, so she could get to know me before I got ill and could also see if I meet the Social Work Department’s new criteria. Mr G and I were left with a form to fill out and return as soon as possible. Now we have to think of things that will make my life much better than it is right now. Then once she knows which way everything will go, she will come back and visit again and let us know if I meet their criteria. So be prepared for many more posts, I would love for you all to find out exactly what is going to happen also.

 

Until next time, take care

Mrs G 

List of Possible Uses for Distraction Therapy!


Playing Solitaire with real cards or online, I play Forty Thieves to help me every now and then.

Knitting, Crotchet, Sewing, Tapestry, Cross Stitch. Drawing, Sketching, Painting, I can’t do any of these things, so I thought I might try an adult Painting by Numbers, slightly harder than the children’s version.

If possible you could try Baking, I can no longer do anything like that and felt a huge burden to my family, so I took over the finances, it helps lessen the pain for a little while but more importantly, I feel I am contributing slightly to helping the family.

Games on Facebook, keeping in touch with friends on Facebook, possibly tracing back down your Family Tree, learn more History from a period that interests you, collecting anything that interests you also.

Swimming can be a great help but beware some people experience feeling extremely heavy and severe pain on leaving the pool. If you are well enough perhaps learning Thai-Chi would be helpful also.

Singing and playing music or just listening to calming music can help. Reading, writing, this can be done in a variety of ways, writing letters to friends, writing fiction or more towards factual, writing poetry.

I find I get short pain relief by making lists of everything to be done the next day, I also found a way to bolster my spirits was to make lists of things I could do mainly alone but sometimes with a small amount of help from my carer.

Play board games with your carer, family or friends, for example: Chess, Backgammon, Trivial Pursuits, the list can be a long one. Meditation, if not known already is well worth learning, as it can be a great way of helping to relieve pain.

To begin with some of these things, as already mentioned may cause a degree of extra pain but if you feel that you are enjoying yourself it may well be worth continuing; the extra pain should not last too long. However if your pain gets a lot worse you may well have to stop.

These are just a few suggestions on things that may distract your pain. I really hope that they are of some use, even if it is just to give you an idea.

Until next time, take care.

Mrs G.

Ps. making this list not only distracted my pain but gave a couple of new ideas I can try. I am sure I will tell you about how it goes some time…