Time To Stop……Please Wish Me Luck!


I have smoked for over 25 years, only stopping when I was pregnant. I always managed to slip back to smoking after my babies were born, even though I tried hard not to. I also managed to stop smoking about six months ago but when my pain got worse, I again slipped back to smoking.

 

I have finally realised that I really want to stop and waiting for my pain to lessen is a bit futile. So, I have taken the bull by the horns, I have ordered an electronic cigarette kit and I have a really good feeling, that this time I will actually do it, I will manage to stop smoking.

 

So the kit arrived two days ago, I have been getting used to the electronic cigarette, so still have been smoking the normal ones, although a lot less. I have been so surprised how easy it has been getting used to it and have not enjoyed smoking real cigarettes at all anymore.

 

I am about to smoke my last cigarette as I post today’s blog. I am 75% sure that this time, pain being high or not, I can give up smoking and I will put 110% work into making sure I do give up.

 

You may think this a strange post, but I am sure there are other disabled people, like me, in a lot of pain. However, they want to stop smoking but are worried like me, how they will cope with the pain they are in. Maybe by following how I cope with giving up will help.

 

I will add a small paragraph at the end of any future posts to let everyone know I am getting along. So here it goes, it’s 9.15am, Sunday, 11 August 2013 and I have just given up smoking.

Until next time, take care.

Mrs G!

 

An Inspirational Man; Giles Duley!


I watched a documentary on Giles Duley last night. I was feeling pretty fed up as I had fallen again and everything ached. However after the first five minutes of the documentary, I was inspired and knew my next blog should be about Giles Duley.

 

He gave up being a fashion photographer, to travel the world and document the stories of the forgotten people. His travelling took him to Afghanistan, to take photos, not just of the injured soldiers but he also planned to take photographs of the injured civilians and enable their stories to hopefully be listened to more.

 

Whilst on foot patrol on one of his last days with the 75th Cavalry Regiment (United States) he stepped on an IED. From that moment on Giles Duley’s life changed completely, he suffered catastrophic injuries, losing both his legs and his left arm.

 

When he arrived back in Britain, he was put straight away into an intensive care unit. During his time in there he nearly lost his battle to survive on more than one occasion. It took quite a few operations over several months before he could even think about rehabilitation.

He went back to Afghanistan to finish what he started, to meet and photograph civilians who have been caught up in this battle also.

 

The inspiration of this man has happened in many ways. However, to me, it was helping a man keep up trying to walk on his two prosthetic legs. Before the end of the programme, the Afghan civilian was walking faster than Giles.

 

This a link to some of his work. I hope, like me, you find this man amazing with all the pain he must have coped with and maybe still does.

 

Thanks for taking the time to read this

Mrs G.

List of Possible Uses for Distraction Therapy!


Playing Solitaire with real cards or online, I play Forty Thieves to help me every now and then.

Knitting, Crotchet, Sewing, Tapestry, Cross Stitch. Drawing, Sketching, Painting, I can’t do any of these things, so I thought I might try an adult Painting by Numbers, slightly harder than the children’s version.

If possible you could try Baking, I can no longer do anything like that and felt a huge burden to my family, so I took over the finances, it helps lessen the pain for a little while but more importantly, I feel I am contributing slightly to helping the family.

Games on Facebook, keeping in touch with friends on Facebook, possibly tracing back down your Family Tree, learn more History from a period that interests you, collecting anything that interests you also.

Swimming can be a great help but beware some people experience feeling extremely heavy and severe pain on leaving the pool. If you are well enough perhaps learning Thai-Chi would be helpful also.

Singing and playing music or just listening to calming music can help. Reading, writing, this can be done in a variety of ways, writing letters to friends, writing fiction or more towards factual, writing poetry.

I find I get short pain relief by making lists of everything to be done the next day, I also found a way to bolster my spirits was to make lists of things I could do mainly alone but sometimes with a small amount of help from my carer.

Play board games with your carer, family or friends, for example: Chess, Backgammon, Trivial Pursuits, the list can be a long one. Meditation, if not known already is well worth learning, as it can be a great way of helping to relieve pain.

To begin with some of these things, as already mentioned may cause a degree of extra pain but if you feel that you are enjoying yourself it may well be worth continuing; the extra pain should not last too long. However if your pain gets a lot worse you may well have to stop.

These are just a few suggestions on things that may distract your pain. I really hope that they are of some use, even if it is just to give you an idea.

Until next time, take care.

Mrs G.

Ps. making this list not only distracted my pain but gave a couple of new ideas I can try. I am sure I will tell you about how it goes some time…

Want to know a secret?


I will be honest here and say I only started to play World of Warcraft (from now on known as WoW) to be able to understand at least one thing our then teenage son was talking about. I then got hooked myself and just had to keep playing. I then sadly got sick and found out that Yay, WoW actually helped reduce my pain whilst I was playing it.

 

I have played now for six years and the funny thing is my son stopped playing about three years ago but I just can not stop and don’t want to stop. I role play and think the reason it helps me reduce pain is because I immerse myself totally while playing. That just means I play in character the whole time, even when I am by myself questing, I will talk to my companion pet or hunter’s Pet if I am Triell, my main character who as you will have probably guessed is a hunter. I also talk away to the Npc’s , they are just characters the makers put in, they don’t talk back to me but I still talk away.

 

It is not just the fact that playing reduces my pain, I love playing this game so much as I can run, jump, be amongst other people, some of whom still don’t know I am disabled. I have made so many friends and some of them I have grown to love because their friendship is given unconditionally.

 

I am not saying that this will help anyone else but that you should try and find at least one thing that can take your mind off the pain you have to go through. I write, meditate and if it’s a good pain day I can normally concentrate on reading also. I will go and make a list of other things that may help you distract yourself from the pain and put it up on the blog as soon as I can.

 

Hope this has helped a little and will start work on the list straight away.

 

I hope you have a good pain day

Mrs G

You May Not Believe This But I Count Myself Lucky!


Yes I suffer massive pain, take countless medications, am a prisoner in my own home but I still count myself lucky. I look around at everything that is happening around the world and I could be in many situations that are worse than the situation I am in.

I could live in Syria and be surrounded by civil war; never knowing what is happening day to day.

I could be one of our many soldiers or civilian workers in Afghanistan.

I could be living in Iraq, amidst countless car bombings and suicide bombers.

I could be a homeless person anywhere around the world, never knowing when or if I would eat that day or get lucky and get a place overnight in a shelter.

But I am none of those things, I am a person who needs twenty-four hour care and am lucky that my husband gave up his job to become my full time carer and am lucky that all my children at one point have been young carers for me, at this moment our youngest daughter is filling this post.

I never ever wanted to be this ill and requiring care but I am, and I am extremely lucky.

As Carer’s Week draws to a close, I would like to thank my husband and children but also every unpaid carer whether they are young carers or a full time carer. We are all lucky and extremely grateful to have you and the outstanding care you give.

The Long Lonely Nights!


I am writing this at 6am after 5 horrible pain filled nights and I suddenly realised there must be so many people who are in the same boat as me. Bloody Hell, sleepless nights are bad enough for everyone, pain or no pain.

I managed to get to sleep the past 5 nights, but within an hour or two, the pain has woken me and I know there is no way I will get any more sleep. I try my hardest to do things to keep my mind off pain, but it seems so much harder, for me anyway, to cope when no one else is awake.

I think my problem would not seem as bad if I could play WoW, but at the moment I can barely cope concentrating on writing this. Maybe I should take the bull by the horns and just play no matter how bad I do it.

Mr G always tells me to waken him if I am having a tough time but I just cannot bring myself to do that. He does so much during the day that he needs to sleep at night. No matter how I feel I can never bring myself to waken him.

If anyone reading this has any good suggestions on making that long lonely night go quicker I would love to hear them and I will add them to this post. Sorry about my little rant but it has helped me get a weight off my shoulders.